Kidney Failure / The Grind / Till death do us part - We're Married

Crying About the Job – Working Wife and Caregiver


Where there is a storm a rainbow will soon shine. I’m still in the eye of the storm. To the point I cried big sobs and screams of how I can’t do it anymore. Why the fukc am i crying? It’s a job. It’s not my world. But, the crush of my self confidence when someone tells you to “start showing value” has me questioning if this is the right job for me. I’m unsure how to move forward. I’ve never been in a position like this where my skills are in question. I’ve always succeeded. But, what I’ve learned is I need a supportive environment. Not a place where every interaction is a confrontation. I react and can facilitate a session next week. But, then I’m tasked with a training strategy first. Then it’s a training plan to implement the strategy. Both take time and what I need to do is facilitate some training!

With the loving support of my husband I feel better. From pep talks every morning, during the day and adter work and now after many stressful cries, waking up at 4:30 a.m. night after night, snapping at everyone with impatience and so much negative narratives that put my self worth down the drain, he says to just quit. Nothing is worth my mental well-being. We can survive until I get the next job. It flipped a switch. If only for a minute I didn’t give a sh!t. I was going to do me and if it didn’t work then I’m leaving. Now all of a sudden life got easier.

I still had a strategy to present to the business head, MC the townhall, and “show my worth”, but I was going to cut off my arm to survive (metaphor based on movie 127 Hours). I couldn’t quit before the townhall. I had a commitment and integrity as a professional. It was a bit rocky at first, but over all it went well. I finally got the help I needed with the strategy. And that was huge! Her 30 minutes of positioning what was in my head and trainer talk into corporate format for senior executives consumption was one boulder off my shoulders.

Another incident came where the hubby just got off the machine and with bloodshot eyes asked me to catch the later train. I flip. I can’t be late! He says in a weak defeated tone “ok” and starts getting out of bed. I hate myself. Wtf am I doing? I would be ~10 minutes late. What is 10 minutes late compared to the help my husband with kidney failure who just finished 8-hours of dialysis needs. I tell him to lie down and I will catch the next train. With the extra time I make congee, get lunches ready, wake up the children and change baby’s morning diaper. I message boss lady that I’ll be 10 minutes due to childcare issues. She graciously suggests I just work from home. If I continue to be late to let her know so she can let certain people know. I’m now sure what “continue to be late” means as I’ve only been late 1 time before this and it was through a snow storm where I was amongst 3 who made it into the office. But, whatevs. I’m thankful that I can be there for the husband. I get off the train and it takes me an hour to get back home. And it’s still only 8 a.m.! Of course I can’t shake that she says if I “continue to be late”. My commute is ridiculous and make it into the offixe everyday and on time. I make it home in time to kiss the kids goodbye. I login and work while baby and hubby sleep. This is the balance my family needs. I need to find a job closer or have a discussion to work from home on a regular. Franklin needs help. He refuses day care (for many reasons -we can’t afford when I’m the only one working, the distrust of non- family caretakers, germs) and dialysis is taking its toll.

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2 thoughts on “Crying About the Job – Working Wife and Caregiver

  1. Hi Eleisa,
    I hear your struggles relating to being a mom to young children, wife to a dialysis patient, and working full time. They were once my struggles. I enjoy reading your blog, because I can relate to your story. In your current posting you talked about feeling little support from your employer. I too experienced the same thing, and I too had the same conversations with my husband about quitting my job. It is amazing the power you regain when you start not giving a f*ck. I often felt beat down and powerless from the circumstances of my life. However, reading your story allows me to reflect on my situation from a different perspective. I see amazing strength and resilience in you, and from that, I know that I too am a strong woman. My husband passed on this year, from complications related to EPS. It is such an ugly disease, as I’m sure you’re already aware. Take care and please keep sharing your story.
    LD

    • Dearest LD, first and most importantly, my deepest condolences to you and all those who love you and your husband. Please accept this virtual hug to lift you up emotionally, mentally and spiritually. I cannot imagine what you both have been through. You are the strength I pray to have when that day comes for me.

      Thank you for reading and responding. This is the pinnacle thus far of the interaction I hope to have with our connection. I am not alone. WE are not alone. WE are strong women who have lifted caregiver mountains that no one truly understands the mental, emotional, spiritual and physical toll it takes. Add to all of that the other responsibilities of life and I surprise even myself how I survive.
      Even in the eye of the storm know that you are not alone, you are loved, you will survive, and to take care of yourself.

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